| Burden of Rare Disease: a literature review | To compile current knowledge of the burden of rare diseases on patients and families. | 2/17/2023 |
| The UDN: for patients | To provide information about the UDN to patients. | 11/1/2022 |
| The UDN: for healthcare providers | To provide information about the UDN to healthcare providers. | 11/1/2022 |
| What is Rare Disease? | To define rare disease in patient-oriented language. | 11/1/2022 |
| What is Research? | To define research in patient-oriented language. | 11/1/2022 |
| Sequencing Guide | To provide patient-oriented information about sequencing. | 11/15/2021 |
| RNA Sequencing Guide | To provide patient-oriented information about RNA sequencing. | 11/15/2021 |
