UDN

Solving Medical Mysteries
Through Team Science

Informational Flyers

Document TitlePurposeDate Updated
Burden of Rare Disease: a literature reviewTo compile current knowledge of the burden of rare diseases on patients and families.2/17/2023
The UDN: for patientsTo provide information about the UDN to patients.11/1/2022
The UDN: for healthcare providersTo provide information about the UDN to healthcare providers.11/1/2022
What is Rare Disease?To define rare disease in patient-oriented language.11/1/2022
What is Research?To define research in patient-oriented language.11/1/2022
Sequencing GuideTo provide patient-oriented information about sequencing.11/15/2021
RNA Sequencing GuideTo provide patient-oriented information about RNA sequencing.11/15/2021
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