Informational Flyers
| Document Title | Language | Purpose | Date Updated |
|---|---|---|---|
La Red de Trabajo de Enfermedades no Diagnosticadas: para pacientes | Español | To provide information about the UDN to patients. | 3/31/2025 |
| La Red de Trabajo de Enfermedades no Diagnosticadas: para proveedores de atención médica | Español | To provide information about the UDN to healthcare providers. | 3/31/2025 |
| Enfermedades Raras | Español | To define rare disease in patient-oriented language. | 3/31/2025 |
| Investigación | Español | To define research in patient-oriented language. | 3/31/2025 |
| What is Research? | English | To define research in patient-oriented language. | 3/31/2025 |
| What is Rare Disease? | English | To define rare disease in patient-oriented language. | 3/31/2025 |
| The UDN: for patients | English | To provide information about the UDN to patients. | 3/31/2025 |
| The UDN: for healthcare providers | English | To provide information about the UDN to healthcare providers. | 3/31/2025 |
| Burden of Rare Disease: a literature review | English | To compile current knowledge of the burden of rare diseases on patients and families. | 2/17/2023 |
| RNA Sequencing Guide | English | To provide patient-oriented information about RNA sequencing. | 11/15/2021 |
| Sequencing Guide | English | To provide patient-oriented information about sequencing. | 11/15/2021 |