From the Press

Undiagnosed: Diagnosis Difficult
December 13, 2016
WCVB Channel 5, Boston

Network and gene tools help quickly identify new, rare genetic disease
September 29, 2016
Medical Xpress

‘Most challenging patients’ hope to get diagnoses from medical experts
July 21, 2016
WCVB Channel 5, Boston

Searching for answers to complicated ailments
April 12, 2016
My Southern Health

Undiagnosed Diseases Network helps patients with rare conditions
March 22, 2016
Channel 4, WSMV Nashville

Vanderbilt Opens Center For Undiagnosed Diseases
March 15, 2016
Newschannel 5, Nashville

Duke Making Strides to Identify Rare Diseases
March 8, 2016
ABC11/WTVD-TV

Study offers hope for patients with rare diseases
March 3, 2016
WRAL Channel 5

Raising awareness for rare diseases
February 28, 2016
Houston Chronicle

Discovering new diseases on a diagnostic odyssey
December 28, 2015
WHYY Radio’s The Pulse via NewsWorks

A New Challenge For Vanderbilt Doctors: Diagnose The Most Elusive Genetic Diseases
December 18, 2015
Nashville Public Radio

Welcome to the Cloud Hospital, Where Big Data Takes On Mysterious Medical Conditions
11/3/2015
Fast Company

OHSU team receives $1.8M grant to support mystery diseases research
10/14/2015
Portland Business Journal

A powerful new way to diagnose mystery illnesses
10/1/2015
Boston Globe

Vanderbilt doctors make ‘House’ calls to solve mysteries
9/26/2015
The Tennessean

NIH Launches Undiagnosed Diseases Network (UDN) to Study New and Rare Disorders
9/17/2015
MedGadget

NIH Commits $1M to Metabolomics Research Core for Undiagnosed Diseases
01/23/2015
GenomeWeb

NIH Selects MCW, Baylor as Sequencing Providers; Awards Funding for Undiagnosed Diseases Program
09/29/2014
GenomeWeb Daily News

Medical College of Wisconsin awarded $2.5 million grant
09/29/2014
Milwaukee Wisconsin Journal Sentinel

HMGC designated to run Undiagnosed Disease Network sequencing center
09/30/2014
Wauwatosa Now

One of a Kind: What do you do if your child has a condition that is new to science?
07/21/2014
The New Yorker

Undiagnosed Diseases Program Ends Mother’s 20-Year Search for Answers
07/10/2014
Healthline

Hospitals Collaborate to Open ‘Undiagnosed Disease Center’
07/04/2014
Boston Magazine

Medical sleuths seek patients with mystery diseases, offer new tools
07/02/2014
Los Angeles Times

Boston hospitals get rare mission
07/02/2014
Boston Herald

Rare Diseases Targeted in New Research Program
07/02/2014
HealthDay

NIH expands program to crack medical mysteries
07/01/2014
Science Magazine – Online

Medical Mysteries: New Network Will Help Rare Disease Detectives
07/01/2014
NBCNews.com

Undiagnosed-diseases center to open in Boston
07/01/2014
Boston Globe

Disease detectives: NIH network to solve ‘ultrarare’ mysteries
07/01/2014
Scrip Intelligence

NIH creates network to tackle mysterious diseases
07/01/2014
Associated Press (AP) – Washington DC Bureau

NIH chooses Vanderbilt for rare diseases network
07/01/2014
The Tennessean

U.S. agency taps medical centers to investigate rare diseases
07/01/2014
Thomson Reuters Foundation

VUMC to join national undiagnosed disease network in $43M initiative
07/01/2014
Nashville Post

National Institutes of Health (NIH) Names New Clinical Sites In Undiagnosed Diseases Network
07/01/2014
BioSpace.com

David Geffen School of Medicine at UCLA Receives $7.2 Million Grant
07/01/2014
Westside Today

NIH Pumps $43M into Undiagnosed Diseases Network to Target Rare Disorders with Genomic Medicine
07/01/2014
GenomeWeb News

Highland girl to participate in the National Institute of Health’s Undiagnosed Disease Program
06/26/2014
Redlands Daily Facts

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From our Affiliates

Stanford team helps patient who is “unique in the world”
December 14, 2016
Scope Blog by Stanford Medicine

Breaking the code: Inside the search for a diagnosis
Fall 2016
Stanford Medicine

The Power of Model Organisms for Studying Rare Diseases
July 5, 2016
The Genomics Landscape: NHGRI Director’s Page

In Search of Answers
Winter 2016
Vanderbilt Medicine

Houston’s first rare disease day debuts at the health museum
February 17, 2016
Baylor College of Medicine News

Year in Review 2015: Achievements, milestones abound at VUMC (scroll to “UDN enrolls patients”)
December 17, 2015
Vanderbilt University Medical Center Reporter

UO, Baylor team up for NIH-funded Model Organism Screening Center
10/27/2015
Around the O (University of Oregon)

OHSU-PNNL collaboration selected as Metabolomics Core supporting NIH Undiagnosed Diseases Network
10/13/2015
Oregon Health & Science University School of Medicine

An online portal for undiagnosed patients
09/17/2015
Vector, Boston Children’s Hospital’s science and clinical innovation blog

The diagnostic odyssey
09/17/2015
Scope Blog by Stanford Medicine

5 Questions: Euan Ashley on diagnosing the undiagnosable
09/16/2015
Stanford Medicine News Center

Vanderbilt is one of seven centers now accepting patients for Undiagnosed Diseases Network
09/16/2015
Vanderbilt University Medical Center Reporter

UCLA opens new program to solve mystery genetic diseases
09/16/2015
UCLA Health and Medicine News

HudsonAlpha to provide sequencing services to NIH Undiagnosed Diseases Network
09/16/2015
HudsonAlpha Press Release

Gateway to Diagnosis Opens
09/16/2015
Harvard Medical School News

Undiagnosed Diseases Network launches online application portal
09/16/2015
National Human Genome Research Institute

Bringing CLARITY to families with undiagnosed disease
05/21/2015
Vector, Boston Children’s Hospital’s science and clinical innovation blog

Baylor College of Medicine, Medical College of Wisconsin to conduct DNA sequencing for Undiagnosed Diseases Network
09/29/2014
National Human Genome Research Institute

Human and Molecular Genetics Center selected to run Undiagnosed Disease Network sequencing center
09/29/2014
MCW News Center

Solving medical mysteries: The Undiagnosed Disease Network
07/23/2014
Vector, Boston Children’s Hospital’s science and clinical innovation blog

Baylor, Texas Children’s join national collaboration to solve most difficult, rare medical cases
07/01/2014
Baylor College of Medicine News

Duke Named to National Network Studying Rare Diseases
07/01/2014
Duke Medicine News and Communications

New ‘Undiagnosed Disease’ Center Funded by NIH
07/01/2014
Harvard Medical School News

NIH names new clinical sites in Undiagnosed Diseases Network
07/01/2014
National Human Genome Research Institute

Stanford given $7.2 million grant to join Undiagnosed Diseases Network
07/01/2014
Stanford Medicine News Center

UCLA awarded $7 million to unravel mystery genetic diseases
07/01/2014
UCLA Newsroom

Vanderbilt selected to participate in Undiagnosed Diseases Network
07/01/2014
Vanderbilt University Medical Center Reporter

HMS to Oversee Undiagnosed Diseases Network
01/07/2014
Harvard Medical School News