UDNF PEER
About the Undiagnosed Diseases Network Foundation (UDNF)
The UDNF is a 501(c)(3) nonprofit that works together with the UDN and the undiagnosed community to make diagnosis, research, and treatments possible for all.
The UDNF aims to foster collaboration among patients, clinicians, and scientists to enhance the quality of life of undiagnosed and ultra-rare disease patients. The UDNF does this by mitigating barriers to equity and access in healthcare; setting standards for patient management; and bridging diagnosis and therapeutics as well as research and clinical care in undiagnosed patients and patients with ultra-rare diseases.
Led by and for patients and their families, the UDNF will become the central resource for the undiagnosed community. From when a patient first experiences unexplained symptoms to their 10-year anniversary of effective treatment, the UDNF will provide the resources, community, and research they need to live their best lives. No patient or family will have to traverse the unknown alone.
The UDNF envisions a learning healthcare system where researchers, clinicians, and patients work together to advance individual and community wellbeing. By leveraging advancements in science, technology, and service delivery, the UDNF aims to continuously improve health quality and efficiency for undiagnosed patients.
The UDNF Participant Engagement and Empowerment Resource (PEER) serves as a resource to support UDN participants and advocate for the broader needs of the undiagnosed community. Learn more at: https://udnf.org/about-udnf/peer-team/.