La Red de Trabajo de Enfermedades no Diagnosticadas | Español | To provide information about the UDN to healthcare providers. | 1/3/2024 |
La Red de Trabajo de Enfermedades no Diagnosticadas | Español | To provide information about the UDN to patients. | 1/3/2024 |
Enfermedades Raras | Español | To define rare disease in patient-oriented language. | 1/3/2024 |
Investigación | Español | To define research in patient-oriented language. | 1/3/2024 |
Burden of Rare Disease: a literature review | English
| To compile current knowledge of the burden of rare diseases on patients and families. | 2/17/2023 |
What is Rare Disease? | English
| To define rare disease in patient-oriented language. | 11/1/2022 |
What is Research? | English
| To define research in patient-oriented language. | 11/1/2022 |
The UDN: for healthcare providers | English
| To provide information about the UDN to healthcare providers. | 11/1/2022 |
The UDN: for patients | English
| To provide information about the UDN to patients. | 11/1/2022 |
RNA Sequencing Guide | English
| To provide patient-oriented information about RNA sequencing. | 11/15/2021 |
Sequencing Guide | English
| To provide patient-oriented information about sequencing. | 11/15/2021 |