UDN

Solving Medical Mysteries
Through Team Science

Informational Flyers

Document TitleLanguagePurposeDate Updated
La Red de Trabajo de Enfermedades no Diagnosticadas: para pacientes
EspañolTo provide information about the UDN to patients.3/31/2025
La Red de Trabajo de Enfermedades no Diagnosticadas: para proveedores de atención médica
EspañolTo provide information about the UDN to healthcare providers.3/31/2025
Enfermedades RarasEspañolTo define rare disease in patient-oriented language.3/31/2025
InvestigaciónEspañolTo define research in patient-oriented language.3/31/2025
What is Research?English
To define research in patient-oriented language.3/31/2025
What is Rare Disease?English
To define rare disease in patient-oriented language.3/31/2025
The UDN: for patientsEnglish
To provide information about the UDN to patients.3/31/2025
The UDN: for healthcare providersEnglish
To provide information about the UDN to healthcare providers.3/31/2025
Burden of Rare Disease: a literature reviewEnglish
To compile current knowledge of the burden of rare diseases on patients and families.2/17/2023
RNA Sequencing GuideEnglish
To provide patient-oriented information about RNA sequencing.11/15/2021
Sequencing GuideEnglish
To provide patient-oriented information about sequencing.11/15/2021
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