On a Medical Frontier, Parents Push Forward
The East Hampton Star
The Diagnosis Crisis Quietly Plaguing Healthcare
Next Big Idea Club
How to Fix the Medical Diagnosis Crisis
The Atlantic
America needs more clinics of last resort for patients who can’t get answers
Stat News
Interview with ReNU Syndrome United Co-Founder and Vice President Lindsay Pearse
Undiagnosed Diseases Network and ReNU Syndrome United
The Undiagnosed Disease Network: CheckRare
CheckRare
#UndiagnosedLife: An Ode to My Wingman on My Diagnostic Odyssey
NORD
The Genetic Underpinnings of an Extremely Rare Disease
University of Miami Miller School of Medicine News
Massachusetts father and son seek answers on shared medical mystery
Chronicle on WCVB Channel 5 – Boston
Mass. mother of son with progressive mobility loss searches for answers
Chronicle on WCVB Channel 5 – Boston