Jan 17, 2018
At age 45, the patient started to have pain in her abdomen. She was found to have an aneurysm in the blood vessel that supplies blood to the spleen (splenic artery aneurysm) and underwent surgery. At this time, she was also found to have inflammation in her gallbladder (cholecystitis), which was removed as well. However, the pain continued even after her gallbladder and spleen were removed. She was then diagnosed with an inflammatory gastrointestinal disease (eosinophilic gastroenteritis).
Around this time, she started experiencing severe fatigue and cognitive issues. She felt like she couldn’t do multiple activities at once, like driving and listening to the radio. She started having other symptoms as well, like night sweats, migraines, loss of balance, blurry vision, joint pain (arthralgia), muscle pain and weakness, and high white blood cell and platelet counts (leukocytosis, thrombocytosis). Testing so far has been unable to identify a diagnosis.
If this participant sounds like you or someone you know, please contact us!