Sep 01, 2017
When the participant was 9 years old, she started having episodes of muscle weakness, pain (myalgia), nausea, and dizziness. Other symptoms during severe episodes include: paralysis, feeling cold, slow heart rate, and low blood oxygen levels. These episodes would range from several minutes to several days. The episodes are typically triggered by physical activity, fasting, fatigue, stress, and extreme temperatures.
At the age of 19, the participant’s symptoms got much worse. She began to experience severe fatigue and weakness, which affected her ability to move and exercise. She was also found to have difficulty walking (scissor gait, gait disturbance, gait ataxia), GI issues (gastrointestinal dysmotility), cold and heat intolerance, excessive sweating (hyperhidrosis), and exercise intolerance. At 24, she was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS).
If this participant sounds like you or someone you know, please contact us!
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