“Share early, share often. Collaborate across institutions, disciplines, patients, and parents… Get the information out there.” – Matthew Might and Matt Wilsey
One of the greatest challenges faced by those living with an undiagnosed disease is the lack of information and communication. When a patient experiences symptoms that aren’t easily classifiable or seem uncommon, they can fall through the cracks of modern medicine—leaving them feeling isolated while the true cause of their disease goes unexamined.
Finding Answers through Sharing
The Undiagnosed Disease Network is a collaborative research study that connects people suffering from undiagnosed conditions with healthcare providers and researchers focused on documenting their symptoms in order to uncover a cause. Hundreds of men, women and children have already participated in our study, giving us invaluable insight into the human body and enabling significant advancements in disease detection.
We are always looking for new participants that can help us better understand the medical mysteries plaguing us today. Here, you can learn more about some of our past participants and help us find and connect with others with the same or similar conditions.
If you or someone you know is suffering from any of the symptoms listed in these profiles, please contact us.
Each of these pages includes details about our participants. We respect the privacy of all our participants, and sharing information on our site is not a requirement to participate in the study. Only participants who have given us their consent will have information posted to our site.